Our time on the bone marrow unit was very hard, we witnessed our bright, beautiful, vibrant girl slowly disappear as her body got sicker and she retreated further into her own mind.
Evie’s body gave up the fight against AML on October 30, 2018, just five months after her diagnosis.
In the days and weeks following our loss, we realized so many people followed our story and wanted to do something to honor Evie’s beautiful spirit.
Our friends set up our first ever annual book drive because Evie loved books, she was always reading and she benefitted from the Literally Healing Program at CHLA. That first book drive we delivered 1000 books to CHLA and since then we’ve continued to collect and donate books- to date we’ve donated, with your support, over 12,000 books!
The Future of #TEAMEVIE
We plan to continue book drives, blood and bone marrow registry drives and our big goal is “Evie’s Bites”: a room on the bone marrow unit stocked with snacks and beverages for BMT patients and their caregivers. Evie would have welcomed the chance to pick out her own snacks, so the room will be filled with healthy snacks as well as not so healthy snacks and everything will be free to patients and their caregivers.
Our focus as a foundation is keeping Evie’s spirit and Light bright.
What would Evie do?